Main Article Content

Abstract

Parents who have down syndrome children find it challenging to accept the presence in their early stages of life, even though parental acceptance becomes the primary factor of the successful parenting of children with cerebral palsy. This study aims to describe the acceptance of parents who have children with cerebral palsy. This study uses a qualitative approach using the phenomenological method for revealing the phenomenon of parents' compliance with cerebral palsy children. The data collection technique uses structured interviews involving 5 participants. The results of this study indicated that parents are trying to accept the child's condition by being grateful, surrendering, socializing, and sharing information with fellow parents of children with cerebral palsy. Support from the closest relatives and friends is an essential factor that makes the process of acceptance easier for parents to undertake.

Keywords

cerebral palsy parent acceptance parenting

Article Details

How to Cite
Siron, Y., Perdana, V. R., Saputri, S. R., & Hanifah, D. N. (2020). Bagaimana menjadi orang tua anak dengan cerebral palsy? A parent acceptance. Aṭfāluna: Journal of Islamic Early Childhood Education, 3(2), 90-104. https://doi.org/10.32505/atfaluna.v3i2.1795

References

  1. Akbar, S., & Woods, K. (2020). Understanding Pakistani parents’ experience of having a child with special educational needs and disability (SEND) in England. European Journal of Special Needs Education, 0(0), 1–16. http://doi.org/10.1080/08856257.2020.1748428
  2. Amodei, M. L., Jalongo, M. R., Myers, J., Onchwari, J., & Gargiulo, R. M. (2013). Survey of Publication Outlets in Early Childhood Education: Descriptive Data, Review Processes, and Advice to Authors. Early Childhood Education Journal, 41(2), 115–123. http://doi.org/10.1007/s10643-012-0555-4
  3. Anindita, A. R., & Apsari, N. C. (2020). Pelaksanaan Support Group Pada Orangtua Anak Dengan Cerebral Palsy. Focus: Jurnal Pekerjaan Sosial, 2(2), 208. http://doi.org/10.24198/focus.v2i2.26248
  4. Aran, Salev, B. & G. (2007). Gaya Pengasuhan Berdampak pada Kualitas Hidup di Indonesia Anak-anak dengan Cerebral palsy. Jurnal Pediatri, 151(1), 56–60.
  5. Biswas, S., Moghaddam, N., & Tickle, A. (2015). What are the factors that influence parental stress when caring for a child with an intellectual disability? A critical literature review. International Journal of Developmental Disabilities, 61(3), 127–146. http://doi.org/10.1179/2047387714Y.0000000043
  6. Cohen, E. (2004). Parental Belief Systems and Difficulties in Parenting: Using the Parental Awareness Scheme As A Therapeutic Guide. Journal of Infant, Child, and Adolescent Psychotherapy, 3(2), 252–269. http://doi.org/10.1080/15289160309348464
  7. Davies, D. (2011). Child development: A practitioner’s Guide, third edition (Third Edit). New York: The Guilford Press.
  8. Dwairy, M. (2009). Parental Acceptance Rejection: A Fourth Cross-Cultural Research On Parenting And Psychological Adjustment Of Children. Journal of Child and Family Studies, 19(1), 30–35.
  9. Eliyanto, H., & Hendriani, W. (2013). Hubungan Kecerdasan Emosi dengan Penerimaan Ibu Terhadap Anak Kandung yang Mengalami Cerebral Palsy. Jurnal Psikologi Pendidikan Dan Perkembangan, 2(2), 124–130.
  10. Fernández-García, C.-M., Rodríguez-Menéndez, C., & Peña-Calvo, J.-V. (2017). Parental control in interpersonal acceptance-rejection theory: a study with a Spanish sample using Parents’ Version of Parental Acceptation-Rejection/Control Questionnaire. Anales de Psicología, 33(3), 652. http://doi.org/10.6018/analesps.33.3.260591
  11. Filus, A., & Roszak, J. (2014). Relationships Between Parental Power, Prestige, and Acceptance, and the Psychological Adjustment of Young Adults in Poland. Cross-Cultural Research, 48(3), 286–294. http://doi.org/10.1177/1069397114528458
  12. Glavak-Tkalić, R., & Kukolja-Cicmanović, R. (2014). Effects of Perceived Parental Acceptance–Rejection and Interpersonal Power–Prestige on the Psychological Adjustment of Croatian Adolescents. Cross-Cultural Research, 48(3), 231–239. http://doi.org/10.1177/1069397114528298
  13. Grace, R., Bowes, J., & Elcombe, E. (2014). Child Participation and Family Engagement with Early Childhood Education and Care Services in Disadvantaged Australian Communities. International Journal of Early Childhood, 46(2), 271–298. http://doi.org/10.1007/s13158-014-0112-y
  14. Grisham-Brown, J., & Mccormick, K. M. (2013). Lessons Learned from Work with International Partners to Inform Rural Practices for Early Childhood Intervention. Rural Special Education Quarterly, 32(32), 3–10. Retrieved from http://journals.sagepub.com.ezproxy.library.wisc.edu/doi/pdf/10.1177/875687051303200102
  15. Harjani, H. J. (2020). Interaksi Sosial Anak Nonreguler di SLB Zinnia Jakarta. JECE (Journal of Early Childhood Education), 2(1), 49–61.
  16. Harris, T., & Steyn, M. (2014). From your perspective: Black preservice early childhood education students share their stones. Australasian Journal of Early Childhood, 39(1), 4–11. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=95525101&site=ehost-live
  17. Ikasari, A., & Kristiana, I. F. (2017). Hubungan antara Regulasi Emosi dengan Stres Pengasuhan Ibu yang Memiliki Anak Cerebral Palsy. Jurnal Empati, 6(4), 323–328.
  18. Jones, P. R. (1991). Stress Management for Parents of Children with Special Educational Needs. Educational Psychology in Practice, 6(4), 194–198. http://doi.org/10.1080/0266736910060404
  19. King, G., Baxter, D., Rosenbaum, P., Zwaigenbaum, L., & Bates, A. (2009). Belief systems of families of children with autism spectrum disorders or Down syndrome. Focus on Autism and Other Developmental Disabilities, 24(1), 50–64. http://doi.org/10.1177/1088357608329173
  20. Kusumah, M. Y. (2017). Pengalaman Ibu Dalam Merawat Anak Cerebal Palsy di Kabupaten Sumedang. Jurnal Sehat Masada, 10(2), 162–178.
  21. Leitch, S., Sciberras, E., Post, B., Gerner, B., Rinehart, N., Nicholson, J. M., & Evans, S. (2019). Experience of stress in parents of children with ADHD: A qualitative study. International Journal of Qualitative Studies on Health and Well-Being, 14(1). http://doi.org/10.1080/17482631.2019.1690091
  22. Lindsay, S., Proulx, M., Scott, H., & Thomson, N. (2014). Exploring teachers’ strategies for including children with autism spectrum disorder in mainstream classrooms. International Journal of Inclusive Education, 18(2), 101–122. http://doi.org/10.1080/13603116.2012.758320
  23. Machado, M., Machado, F., Neves, S., & Fávero, M. (2014). How Do Parental Acceptance–Rejection, Power, and Prestige Affect Psychological Adjustment? A Quantitative Study With a Sample of Portuguese College Students. Cross-Cultural Research, 48(3), 295–304. http://doi.org/10.1177/1069397114528459
  24. Macintyre, C. (2007). Understanding Children’s Development in the Early Years. Questions practioners frequently ask. http://doi.org/10.1037/032136
  25. McFarland-Piazza, L., & Saunders, R. (2012). Hands-on parent support in positive guidance: early childhood professionals as mentors. Australasian Journal of Early Childhood, 37(1), 65–73.
  26. Meiza, A., Kardinah, N., Rahman, A. A., & Puspasari, D. (2019). Quantitative Profile of Family Acceptance of Children Special Need’s Moslem Parents (Case Study at Rumah Terapi Aura). American Journal of Family Therapy, 47(4), 232–243. http://doi.org/10.1080/01926187.2019.1635540
  27. Perez Algorta, G., MacPherson, H. A., Youngstrom, E. A., Belt, C. C., Arnold, L. E., Frazier, T. W., … Fristad, M. A. (2018). Parenting Stress Among Caregivers of Children With Bipolar Spectrum Disorders. Journal of Clinical Child and Adolescent Psychology, 47(sup1), S306–S320. http://doi.org/10.1080/15374416.2017.1280805
  28. Plows, V., & Whitburn, B. (2017). Inclusive Education Making Sense of Everyday Practice. Inclusive Education. Rotterdam: Sense Publishers. http://doi.org/10.1007/978-94-6300-866-2_14
  29. Pradipta, R. F., & Andajani, S. J. (2017). Motion Development Program for Parents of Child with Cerebral Palsy. Jurnal Penelitian Dan Pengembangan Pendidikan Luar Biasa, 4(2), 160–164.
  30. Prasastiwi, B. H., & Hardjanta, G. (2017). Penerimaan Diri Orangtua yang mempunyai Anak Cerebral Palsy. Jurnal Pemikiran Dan Penelitian Psikologi, 12(2), 100–107.
  31. Puspitarini, Z. (2017). Hubungan antara Pengalaman Orang Tua dalam Perawatan Kualitas Hidup Anak Cerebral Palsy di Yogyakarta Tahun 2016. Jurnal Keperawatan Respati Yogyakarta, 4(1), 112–117.
  32. Putnick, D. L., Bornstein, M. H., Lansford, J. E., Chang, L., Deater-Deckard, K., Di Giunta, L., … Bombi, A. S. (2012). Agreement in Mother and Father Acceptance-Rejection, Warmth, and Hostility/Rejection/ Neglect of Children Across Nine Countries. Cross-Cultural Research, 46(3), 191–223. http://doi.org/10.1177/1069397112440931
  33. Richard M. Gargiulo, J. L. K. (2005). Young Children with Special Needs (Second Edi). Mason USA: Delmar Cengage Learning. http://doi.org/10.15713/ins.mmj.3
  34. Rohner, R. P. (2014). Parental Power and Prestige Moderate the Relationship Between Perceived Parental Acceptance and Offspring’s Psychological Adjustment: Introduction to the International Father Acceptance–Rejection Project. Cross-Cultural Research, 48(3), 197–213. http://doi.org/10.1177/1069397114528295
  35. Rosenbaum P, Paneth N, Leviton A, et al. (2007). A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl, 49(6), 480.
  36. Sakdiyah, H. (2012). Penerimaan Orang Tua yang Memiliki Anak Penyandang Cerebral Palsy (Sebuah Studi Kasus). IAIN Surabaya.
  37. Samuel Kirk, James J Gallagher, Mary Ruth Coleman, N. A. (2009). Educating Exceptional Children Twelfth Edition (Twelfth Ed). USA: Cengage Learning.
  38. Sarimski, K., Hintermair, M., & Lang, M. (2013). Parent stress and satisfaction with early intervention services for children with disabilities - a longitudinal study from Germany. European Journal of Special Needs Education, 28(3), 362–373. http://doi.org/10.1080/08856257.2013.797706
  39. Siron, Y. (2019). Keterlibatan Orang Tua, Regulasi Diri, Agresivitas Mempengaruhi Perilaku Toleran Anak: Path Analysis. Awlady: Jurnal Pendidikan Anak, 5(1), 126–149. http://doi.org/10.24235/awlady.v5i1.3698
  40. Varan, A., Rohner, R. P., & Eryuksel, G. (2008). Intimate partner acceptance, parental acceptance in childhood, and psychological adjustment among American adults in ongoing attachment relationships. Cross-Cultural Research, 42(1), 13–22. http://doi.org/10.1177/1069397107309750
  41. Wahyuni, P. D. (2017). Penerimaan Ibu terhadap Anak Cerebral Palsy. Universitas Mercubuana Yogyakarta.
  42. Whittingham, K., Sanders, M., McKinlay, L., & Boyd, R. N. (2013). Stepping Stones Triple P and Acceptance and Commitment Therapy for Parents of Children with Cerebral Palsy: Trial Protocol. Brain Impairment, 14(2), 270–280. http://doi.org/10.1017/BrImp.2013.19
  43. Wulandari, R. S., & Suryanto. (2020). Penerimaan orangtua pada anak cerebral palsy. Surabaya.